Not a bad night’s sleep. Woke up at about 6 when they came to do sugars, which were 5.5.
Dozed until breakfast, which was porridge toast and marmalade (again!). Breakfast was quite late (around 8:45) as we had a couple of new people so routine a bit delayed. This meant that I wasn’t washed and dressed when Stacey the physio came to get me.
She put my socks, trousers and shoes on, left my nightie on my top half and I went unwashed to the session. Concentrated on standing up to start with. Sat on bench, with table in front of me. Hands on bench, push up, take hands off bench and on to table, straighten up and stand straight. It is incredibly difficult when you can't feel your feet or knees, but need them to be in correct position. Then do same in reverse. Several times. The lovely physios had found a picture of a mini to put on the wall for me to look at! Then there was an e exercise where I had to stand up and then use what looks like a child’s stocking positioned to the side to make me stretch to the side whilst maintaining balance. Did that several times. Then practice with the walking frame, changing direction and everything! Didn’t quite make it back to the room, but managed a fair bit. Got wheeled back to my room.
Nobody came, so I decided to wash and dress top half myself and then tidied my chest of drawers.
Top drawer;
My mug that was a present from Juli that has my secret stash of salt, choc buttons (biscuits when I have them) etc.
My folder with all my NMO, insulin and other info.
My ward folder,
My exercise belt (not being used as much as it should be);
Earbuds (not being used now I’m in my own room);
Spare pens;
Leg straps for my day bag. I am getting quite a collection of these as they keep appearing, but they are being reused, so I don’t need new ones each day.
My blood sugar tester (for when I don’t get done by the staff)
And finally my purse.
Second drawer- not much.
My get well and Mothering Sunday cards - I did have them displayed, but they keep falling over
My little handbag.
It’s a fairly empty drawer.
Third drawer - clean nighties and t-shirts
Fourth drawer (that I can’t reach from bed)
Dirty clothes in bag,
Clean socks and trousers,
Slippers.
They are all very heavy drawers and the top one sticks, so they are quite difficult to open and close. Had a funny moment when trying to shut one As I was in front of it at an angle in my wheelchair. Stupidly, I hadn’t put the brakes on, so when I pushed, the chest of drawers went one way, and I went backwards the other! Must remember about brakes.
Care assistant finally got round to coming to see me, so we had a standing up wash of my lower bits, so that counted as another physio session as I had to stand for quite a long time. Nappy changed, also standing up. I remember trying to do that to a wriggly toddler who refused to lie down for a nappy change. I was easier as at least I stood still!
Pre lunch sugars 10.2. Lunch pineapple juice, ham salad and cheese and biscuits. Blood pressure 97/56.
Quiet afternoon. Looked at stuff Sian had found that I needed to look at for work, did some reading, some puzzles etc. Felt a bit clumsy, so didn’t do any knitting as the ball of wool always ends up on the floor, and I can’t pick things up.
Supper was also a bit late at 17:45. Pre supper sugars (actually mid supper sugars as done by me as no one checked them) 12.9. Supper was minestrone soup, sausage in onion gravy, mash and mixed veg (again mostly broccoli) with another lovely crisp apple for desert. Despite my best efforts of spreading the small paper napkin over my chest, I still managed to get gravy on my t shirt!
Pressed the bell to be taken to loo. After a while, a nurse popped head round door and asked if I was ok, I explained I needed to go to loo, she was just taking a bedpan from the next room, but would be with me shortly. She wasn’t. Another care nurse came, I explained again and she went off to get cricket. I got to loo slightly too late, but a successful visit!
Sian and Juli arrived whilst I was in the bathroom and had to wait outside. When I came out and was in my chair again, we went to the drinks machine and then the day room. We talked about the visit from the stair lift man. All seems under control, it’s being fitted next week, but Juli needs to be able to get into the study to be able to, put an extension lead out to the stair lift.
Then we talked about work and Mum and Dad’s visit next week. We've still not had confirmation of time of appointment at Oxford, so I’ll have to ring them tomorrow. All too soon it was time for them to go, so back to room, watched MasterChef, Midsomer Murders and now the news, which is all very depressing,
I have been put to bed, but for some reason this nurse insisted on taking my wheelchair back to the wheelchair store. I can’t understand this – there is space in the room for it, it has my name on the handle and it’s a hassle when they go to get it in the morning. Oh well, who am I to question the rules? Perhaps they are afraid I’ll escape.
Had my night time meds, which now include an antibiotic as yesterday I had some blood in my urine. It’s been clear since. Night nurse didn’t empty my leg bag before attaching it to the night bag, so I suspect I’ll be disturbed at some point as it’s going to need emptying before the morning.
Shoutey man has been shouting very loudly all evening. All I can say is I’m glad I’m in my own room with a door, which muffles it quite a lot. I hope he shuts up when they turn the light off, but I doubt it.
So, goodnight!
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