Well, all went according to plan last night – tv, then settled at around 10.30.
Another good night. I was woken up at around 2 to be asked if I wanted to be turned, so I said no, it was ok, I was still comfy. Back to sleep.
Thursday 10th
Woken up at 6 for obs. Blood pressure good – 106/76, but sugars 3.6. Nurse said that she was sorry for me being on this ward as most of their patients were confused.
I HAD CAKE!!!!!!
I was brought tea, yoghurt and a slice of fruit cake to get sugars up quickly. I was also given a packet of digestive biscuits, but I be stashed those for later. By 7 I’d got fed up with Breakfast radio (heard all the news and it was just repeating) so I listened to a Radiolab podcast (Sian has been nagging me to listen to them for ages). Pre Breakfast sugars were 4.8. After breakfast sugars 7.5 so insulin was at proper time.
Got out of bed on to chair. I would have preferred to have stayed in bed for a bit longer so that I could do some more exercises. It is difficult to do some of them (actually impossible) without someone else to help, but I had done some earlier. So I’ve been doing the chair exercises that I was given before – but they don’t seem as valuable as I don’t have a piece of paper with them on!
Dr Makerjee (?) was doing a quick trip round the ward (i.e. standing in the doorway) updating his junior doctor on all patients. He talked to me and said that Chippenham would be the best place for me to transfer to as it has a neuro ward. Looking good, then (but no idea when).
Visit by Dan the diabetes nurse, who reviewed the sugar levels and my insulin dosage. Because of the hypos in the morning, the evening dose is going to reduce from 10 to 6 units, and the morning ones increased from 18 to 22. This should even out the levels. Is it wrong to say that I quite liked the hypos – especially when I get cake!
As I am going to be on steroids for a long time, then I’ll also be on insulin for a long time. Dan suggested that I am shown how to use my own pen for injecting, so he went off and came back with a demonstration pen. So now I know how to do it. He also gave me an info pack about the type of insulin (Humulin M3) with a diary etc. He also talked about driving, hypos etc. The best thing for a hypo is 5 jelly babies, which I should keep with me (you can also have half a can of full fat coke or Lucozade, but it’s the jelly babies that are best).
Spent time doing work stuff, and had a cup of tea at 11 but refused the biscuits.
Lunch – fish in butter sauce, mash and mixed veg followed by strawberry yoghurt (my second of the day – I hope there’s jelly for supper).
I asked to be put into bed so that I could do my physio, but the physios arrived. Did standing exercises – hanging on to the rotor stand while trying to put weight on my weaker right leg. It’s actually quite complicated trying not to fall over when putting weight on foot with no feeling – had to concentrate on thigh muscles while keeping knee “loose”. You try it!! Did it a few times, then had to sit down for a bit before trying it again… And again……and again…..they finally left me in peace after putting me in bed and rearranging my stuff around me (you have to be careful when being moved as you tend to end up with things out of reach).
I had a little snooze then Juli arrived – I wasn’t expecting him, but he can’t come this evening (secret stuff – watch Sian’s update). We did some work stuff, and then he helped me with my bed exercises that needed two people. I still can’t do some of them without the physio.
Julio went to get some tea from downstairs and I did some more work stuff. Juli then left as he had to be back by 5.30. Supper arrived and my pre supper sugars were 18. Not as high as usual, but hopefully tomorrow with the new doses they will be even lower. I had ham and tomato sandwiches, thick veg soup and ice cream. I dropped my plastic spoon so had to wait for someone to get me another one. Now that I have finished, I have kept the spoon in case I need it in future. I also ate some of the grapes that Sian sent in.
I am now watching rubbish on TV (Pointless) waiting for the news and my insulin.
Had insulin. It’s now just gone eight and we are entering the twilight zone. Handover done. Everyone in this ward is waiting to be discharged or transferred, but no beds available in care homes or rehab units. It’s ridiculous .
Will let you know if anything exciting happens!
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