Awake during night and did the usual of ringing and asking for more water at about 4am. Properly awake at 5 and lay there. Early morning sugars 7.7; bp 112/57, so all good.
Breakfast at 8.30. Proper bran flakes this time and toast with diabetic marmalade. Lay in bed for a while, watching tv, checking bank statement and emails. Diabetes nurse came to see me and we agreed that she would raise the morning dose to 30 units, but keep the night time one the same as the morning sugars seemed to be ok.
Up and dressed. I had been booked in for the hairdresser that comes in once a week, so wondered when this would be. Gerry came a bit later and wheeled me into the loo in the day room, which has a hairdressing sink. She explained that she and her colleague had run the hairdressing service in the “main hospital” for 25 years until her colleague gave up to care for her husband, Gerry retired but then got an email asking if she’d provide hairdressing service for here. She does two mornings a week as a volunteer – one for my ward, one for the other. She provides the hairdressing stuff, and the hospital provides the room and the towels. She washed and cut my hair, then wheeled me out into the day room to blow dry it (not allowed electricity with water!) I felt so much better afterwards, and I had lots of comments on the ward when I got back from people passing my room. I have told Gerry that if she has any vacant appointments she would like to fill (it’s not worth her while coming for less than 3 people and she doesn’t always have 3) I’ll have a wash and blow dry.
No pre lunch sugars today, but lunch was soup, ham salad and cheese and biscuits.
Had a text from Theet saying she’d won the Easter egg raffle, so I needed to go down to Grapevine to collect it before they shut at 3.30. Bit worried about how I was going to get back up the slope with a huge egg in a basket on my lap, but I was saved the problem as a number of the ward staff were in the restaurant having a break, and one of them offered to carry it back up to my room for me. I gratefully accepted the offer!
The physio had called in the morning to take my folder to update it, and brought it back. Disappointed that my Expected Discharge Date has been moved back from 30th March to April 14th. However, this isn’t surprising given that we had to abandon yesterday’s physio session and that there are 2 bank holidays where there won’t be any. I have got three sessions timetabled for next week. I didn’t see the occ therapist yesterday either, and they have to arrange the family meeting.
Another complication of this is that I have an appointment with the NMO team on 5th April, so someone needs to arrange transport to get me to Oxford on time and to bring me back again. I am not sure how well the logistics of this will be managed, as the appointment is for several sessions with different bits of the NMO team on the same afternoon. I shall have to investigate this more next week.
****too much information warning*****
I asked to have my nappy checked, and it was suggested that we revert to the bathroom, where I was cleaned and sat on the commode over the loo. I was left to see if anything happened – AND IT DID!!! I definitely felt something, although I wasn’t in control. Nothing on the bladder front, but it’s the bowels I want to get under control. The nice nurse has suggested that I ask to be taken to the toilet after every meal to try to get more feeling and to get into a routine.
****ok now!*******
Carried on watching tv, doing puzzles and updating this.
They are still worried about my bp, so it was taken again at 4pm and was 99/57.
Pre supper bloods 22.4. Supper was nice - liver and onions, mash and peas and cheese and biscuits. Asked to be taken to the toilet again, and again some success. It also provides a bit of physio as it involves quite a lot of standing up on the cricket and sitting down again.
Suddenly realised what the date was and that I’d missed Sandra’s birthday yesterday. Feel awful, no excuses except this is a time warp. I should have realised yesterday when I put the date on the update. I am very sorry.
Julio and Sian arrived a bit late as they hadn’t been able to leave the office in good time. They brought some mail, including a letter from Dad that he’d posted on the ship (and didn’t think that I’d get before they were back). They also told me that Freckles Farm (where we got the ducks and has a really good bacon butty trailer ) on the corner of the Brinkworth Rd and the road to us had been done as a cannabis farm. I had read about it in the local news page. I hope it wasn’t the nice people who have the farm as they had been talking about renting out one of the barns last time I spoke to them.
S&J left, leaving me in my room. Watched Masterchef and a bit sorry that the little Welsh man didn’t get through. Put to bed, then rang Ria to wish them a good holiday and to see how the packing was going. They have quite a lot to take, including Rosa’s buggy and car seat ( amazingly free of charge) and the surf board with nappies in the board bag. Mylo is nervous about flying, so I hope he’ll be ok. I’m sure he will.
That’s it for tonight, then.The ward corridor lights have just gone out, so that’s a hint, I think!
Goodnight!
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