Friday, 11 March 2016

11th March - Great Western & Feeling Useless

Friday 11th March

Well, nothing interesting happened last night except that I was following Sian and Julio in their adventure that involved Sian’s car and Aberdare (I am sure she’ll tell you about it on Facebook).

This morning I missed my early morning part one breakfast as I didn't have a hypo. – blood sugars 5.4; blood pressure 110/56 so I am fit and well! I did my own insulin injection (increased  to 22units) under supervision.

Nursing staff had a really busy time in the ward – L in next bed was sick and unhappy  which involved cleaning and tidying her up and reassuring her, and a call to the Dr; E was very demanding and had to be talked to and calmed down, but she kept demanding to get out of bed and shaking the side rails. I just lay here comfy , listening to the radio (interview with very enthusiastic lady talking about bats), and ignoring the mayhem around me. Nursing staff are very good.

Had breakfast in bed – toast and tea, and did some exercises. I really could do with someone to help as I do not have control over my legs really so I had to miss out several of them.


Got out of bed at around 10:30 Dr Makerjee did his rounds, listened to my chest and back and watched me moving my legs as much as I could. Again talked about waiting for a bed at Chippenham, and added vitamins to my meds as steroids can interfere with this as well (or is it a comment on the hospital catering!!) He asked if I was getting twitching or spasms at night. Answer – yes. This is a good sign as it is the nerves regenerating but if it was uncomfortable/painful, I am to let the nursing staff know and they can give me something for it. We’ll see what happens tonight. It usually happens in the evening and it used to be a problem at night before, but it seems more manageable now.

My day time nurse, Vicky is like Jenny at the Purton shop. If you close your eyes and just listen, it really could be Jenny – not just the voice, but the expressions and even the humming. I must ask if she has a sister.

I feel a bit useless – both M and E could do with someone talking to them (or at least answering their questions about where they were, when is my daughter coming? etc.) If I was in my wheelchair, I could have scooted over to them and answered rather than shout across the ward and then they don’t know who is being talked to and so they answer other people’s conversations. They just need someone to listen to them. This must be a real problem in care homes. Later in the afternoon some sixth form volunteers came and one sat with E for a while.

Pre lunch sugars were 10.4. Lunch was fish and chips and mushy peas, followed by another lovely apple.

Feeling a bit odd – light headed and my vision was a bit blurry, so listened to radio rather than to as unable to see well enough to do work. Back to bed as sugars now 29, but blood pressure fine, so had a bit of a rest.

*****too much info warning******
I have had my bowels open – first time since Monday.

Ok again!

Feeling a bit better after the lie down, so went ahead with physio, but we did the bed ones again rather than getting me up for the standing or sitting ones. Able to do some of the ones that need two people. I could feel that there is a definite improvement.

Later ( 5pm ) blood sugars up to 31. I have had a fast action dose of insulin to try and get them down which will not interfere with my supper dose.

Julio arrived with some Monnpig cards I had ordered for the staff at the Radcliffe unfortunately these were a day late, so the one for Tina will miss her as she's was leaving for home in Greece for a holiday today. I think we might wait until she comes back.

Juli has been talking to the doctor because it seems that Chippenham had been told that I wasn‘t fit to be transported there. We have no idea how that message got  through as Dr Makerjee has been chasing it, and we said that I had been supposed to have gone straight to Chippenham and I was only here because they hadn’t had a bed for me there. They also had no idea that the reason I was still technically under John Radcliffe for the NMO.

He went to get a cup of tea, and then when he got back up to me, I spilt his all over his lap and the floor, so he had to go home to change.

I had cheese and pickle sandwich and very nice pea and ham soup. I was going to have ice cream but L in the next bed wanted ice cream and as it was the first thing she’d eaten today after being sick and it was the last one, so I swapped to yoghurt. The jelly supply seemed to have dried up.

I have now done my second insulin injection of 6 units under supervision (it comes already primed; I’m clearly not allowed to do too many stages at once) so I dialled the right dose, stuck it in me and counted to 10.

Did some work stuff, watched some tv and Julio came back. We chatted and he left at 8. All my companions are in bed (it’s 20:30 and, I think, asleep at least they’re not talking to shouting) so I am the only one with a light on, waiting to be put into bed, and then I shall carry on with radio / tv until around 10

So, that’s it for today. I think Saturday’s quieter!

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