Today’s update, part 1 (Friday night/ Saturday
morning
Not a great night. Because of other demands by two patients (mad lady and next door lady) who we're having bad times, I didn’t get out of the chair and into bed until 23:30. I was very glad to lie down! Propped up on my side as I have mild pressure sores on my bottom despite the air mattress.
Blood sugars very high, so night nurse (Dionne) said I needed to have my sugars taken every 2 hours, so woken up at 2am. They were still high, so the on call Dr was called and came to see me. He prescribed iv fluids, which started at 3 am. Bloods being taken every 2 hours.
Didn’t really sleep at all – just dozed and listened to radio 5 live. I think I ‘be mentioned before that it is really interesting listening to people who are passionate and knowledgeable about the subject, so I actually enjoyed listening to World Football Focus with Tim someone , a Very good British football pundit who has lived in Brazil for years. What he doesn’t know about South American football and South American players playing in Europe isn’t worth knowing! There was also a woman pundit who covers The game in Europe.
The rest of the time I was thinking about an autobiography I might write, remembering things and planning chapter headings. Don’t know if anything will come of it.
Morning came at 6 am. More bloods, and other obs.
Breakfast arrived – bran flakes and I’ve reverted to coffee. I need something sweet and can’t drink sweet tea so had coffee with a sweetener. It was very sweet!
Bed bath and again propped up slightly on one side. Day nurse (Mady from Romania) said she’d like to get me into the chair for lunch. She’s been a neuro nurse for 2 years, and went into neuro because her dad has a neuro condition.
Because I missed breakfast on Thursday (had people with me and curtains drawn) I was brought the ingredients – inner packet of bran, and jug of milk. Poured both into bowl, and milk was removed, but for some reason the bran was left. It’s been on my bedside table ever since. This morning, I told the person who gave me my breakfast that it was there, but she said she’d take it last. I reminded her when she came to get my empty bowl, but again she said that she’d get it later. We’ll see how long it stays there!
I’m getting a bit like Bap with a bit of OCD and having to have the things on my bedside table arranged just so. To the left, nearest me, is my notepad and phone, next is the jug of water and plastic cup. Then the cardboard kidney bowl they used to move my things when I changed ward. This contains: Yardley lavender stick that Mum and Dad brought me, together with the 4711 wet wipes; little battery fan I used in Swindon when I got very hot; spare stylus for iPad; spare pen; emery board as all my nails are breaking for some reason; sugar free polls and my stash of biscuits that come with morning tea but which I can’t eat because of the high sugars (but I do have the occasional one on the basis that the sugars are so high it won’t make much difference – to be fair, I’ve only had 2 over the last 3 days and it didn’t seem to). Lastly, to the right is my information pike – the NMO booklet, treatment and medicine leaflets, copies of consent form and questionnaires; tourist leaflet collected on my foray out of the word yesterday and my puzzle book.
Had a visit from the duty neuro doctors who chatted with me, asked about what had happened reminded me about what I should be eating (I know this and choose the things on the menu that have hearts against them and I’ve given up on the fruit juice). I must drink a lot, so I’m getting through lots of water.
Lunch arrived – veg soup in a mug with a handle, which made it much easier to eat; egg salad and an orange that was not easy to get into. I now have orangey smelling hands. Not sure how much sugar is in an orange, but it seemed the best option on the after part of the menu. Another coffee with sweetener.
That’s where we are now. Going to go back into bed soon as I shouldn’t be in the chair too long and it was definitely too long last night.
Not a great night. Because of other demands by two patients (mad lady and next door lady) who we're having bad times, I didn’t get out of the chair and into bed until 23:30. I was very glad to lie down! Propped up on my side as I have mild pressure sores on my bottom despite the air mattress.
Blood sugars very high, so night nurse (Dionne) said I needed to have my sugars taken every 2 hours, so woken up at 2am. They were still high, so the on call Dr was called and came to see me. He prescribed iv fluids, which started at 3 am. Bloods being taken every 2 hours.
Didn’t really sleep at all – just dozed and listened to radio 5 live. I think I ‘be mentioned before that it is really interesting listening to people who are passionate and knowledgeable about the subject, so I actually enjoyed listening to World Football Focus with Tim someone , a Very good British football pundit who has lived in Brazil for years. What he doesn’t know about South American football and South American players playing in Europe isn’t worth knowing! There was also a woman pundit who covers The game in Europe.
The rest of the time I was thinking about an autobiography I might write, remembering things and planning chapter headings. Don’t know if anything will come of it.
Morning came at 6 am. More bloods, and other obs.
Breakfast arrived – bran flakes and I’ve reverted to coffee. I need something sweet and can’t drink sweet tea so had coffee with a sweetener. It was very sweet!
Bed bath and again propped up slightly on one side. Day nurse (Mady from Romania) said she’d like to get me into the chair for lunch. She’s been a neuro nurse for 2 years, and went into neuro because her dad has a neuro condition.
Because I missed breakfast on Thursday (had people with me and curtains drawn) I was brought the ingredients – inner packet of bran, and jug of milk. Poured both into bowl, and milk was removed, but for some reason the bran was left. It’s been on my bedside table ever since. This morning, I told the person who gave me my breakfast that it was there, but she said she’d take it last. I reminded her when she came to get my empty bowl, but again she said that she’d get it later. We’ll see how long it stays there!
I’m getting a bit like Bap with a bit of OCD and having to have the things on my bedside table arranged just so. To the left, nearest me, is my notepad and phone, next is the jug of water and plastic cup. Then the cardboard kidney bowl they used to move my things when I changed ward. This contains: Yardley lavender stick that Mum and Dad brought me, together with the 4711 wet wipes; little battery fan I used in Swindon when I got very hot; spare stylus for iPad; spare pen; emery board as all my nails are breaking for some reason; sugar free polls and my stash of biscuits that come with morning tea but which I can’t eat because of the high sugars (but I do have the occasional one on the basis that the sugars are so high it won’t make much difference – to be fair, I’ve only had 2 over the last 3 days and it didn’t seem to). Lastly, to the right is my information pike – the NMO booklet, treatment and medicine leaflets, copies of consent form and questionnaires; tourist leaflet collected on my foray out of the word yesterday and my puzzle book.
Had a visit from the duty neuro doctors who chatted with me, asked about what had happened reminded me about what I should be eating (I know this and choose the things on the menu that have hearts against them and I’ve given up on the fruit juice). I must drink a lot, so I’m getting through lots of water.
Lunch arrived – veg soup in a mug with a handle, which made it much easier to eat; egg salad and an orange that was not easy to get into. I now have orangey smelling hands. Not sure how much sugar is in an orange, but it seemed the best option on the after part of the menu. Another coffee with sweetener.
That’s where we are now. Going to go back into bed soon as I shouldn’t be in the chair too long and it was definitely too long last night.
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