Dr Shaw, the neuro consultant based at Bath and in charge of the unit came in and we talked about my symptoms and my progress. She is keeping an eye on me and letting Oxford be in charge!
OT came and we managed the assessment, she was impressed bye ability to put my bra on (actually, so was I!).
We talked about what home was like, and how I was going to manage – she was also impressed by the fact that Juli had found a temporary stair lift.
Then we had an ongoing issue with the Oxford appointment . They had phoned to and asked if we could change it from 2pm to 10:30. The sister, me and various other people discussed to see if we could get me up, dressed, into the car and there in time. Decided we probably could if the night staff got me up. Then there was another call to say could we make it by 10. No, this was not going to be feasible, so ward sister left it to the ward clerk to ring and say 10:30 or 2, but not 10. Not heard back yet (but later the clerk came to say that she would arrange a packed lunch for me – I didn’t mention that we had planned on a McDonald’s drive through!).
Pre lunch sugars 10.7. Had a lovely lunch of orange juice, chicken and ham and veg pie with boiled pots and sweetcorn, followed by an apple. I really enjoyed it. After lunch it was a quiet time until Sian arrived and we went to the Grapevine to do some work until 3 when Juli arrived for instructions on how we do the car transfer. We went back to my room to wait for the physios, and Juli told me about the home visit by the community occupational therapist. This had gone well (just as well, really after all the time Juli and Sian had spent over the whole Easter weekend tidying, cleaning and moving furniture!) They will lend me a ramp for the bathroom, but we will need to remove the bathroom door and put a curtain up for the time being. I will also have various other bits of kit to help – I will be allowed to use the kettle & the aga ovens, but I am banned from the top of the aga & the deep fryer!
Physios arrived and we made our way to the car park, where I repeated yesterday’s exercises with Juli watching. Unfortunately, he had a phone call, so Sian, me and the physios talked cars and Italian job, vintage tractors etc and were then joined by a bloke who was very apologetic as he had parked his motorbike at the very edge of the hatching. Physios said that was fine, there was plenty of room and we all chatted for a bit as he raced a few times on some of the tracks we have on the roof of the Mini. He said no one would believe him when he told them he’d talked cars and racing circuits with 4 women! Juli came back, and we did the exercises with him. We all decided that the banana board was a better option, with a platform step. They’ve given Juli a banana board, but we must remember the step next week.
Gave up and Sian, Juli & I came back to room, where chatted a bit more. Pre supper sugars not good at 22.8, even though the insulin has been upped to 34 units. We’ll see what happens. Juli and Sian left, and I waited for supper – soup, then salad and cheese and biscuits (now you begin to see the attraction of McD’s!). Toileted and back into my chair. M called in my room to ask if I had a small sherry she could have to help her sleep. I had to disappoint her.
Juli came back, love him and we went and got him his soup, then went and sat in the day room doing nothing until it was time to go. I sat and watched Masterchef, then Martina, my care assistant, came to put me to bed. She does this most nights now, and we have the routine down to a T (although she does still have to remind me to take my glasses off as I’m getting undressed in bed so they don’t fly off!).
Now in bed, having had confirmation from Juli that he had got home safely and what he was having for supper. So now, I am ready for the news and, hopefully, a good night’s sleep.
Good night! Love to all.
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